Cherry Lane,

I know what you are going through. I have 3 children and I have a 4 yera old with swcah and I have a 2 year old boy with Fragile X Syndrome which is like autsism and downs he is non verbal and really is in his own little world he has therapies 4 times a week and i would not trade him for the world and i have a daughter who is 3 and she is healthy. But my point is that my husbands side does not see gages fragile x as being something that he is going to live with for the rest of his life and might even live with us or in a group home we are not sure of his future but we are doing our best at raising him. But my husbands side on christmas was asking about gage and my husband was telling them about what he is starting to do and his one aunt said" Fragile X hell I see nothing wrong with him he looks fine to me." I know that he might not look like something is wrong but he does have the charceteristics cant spell. but anways my point is that they think that this is going to go away and they ask like so how is his fragile x doing? Well, you know what it might get better it might get worse we wont know untill that happens. I know that if you were around my son you would think that something is not right with him he jabbers and he sounds like he is deaf he has that kind of voice and he gets really upset when he is around alot of people and he starts to get really loud and cries and some might think that he is a spoiled brat and that he is getting his way but that is how he is we can not even go to walmart or any fast food places or anything. So we do therapy at like walmart or mcdonalds places to get him aware. But with you i know what it is like and i hate the fact that my son gets shadded and he does not get to go places with the other kids with his other mama and he gets upset  and even with my parents they dont take him at all anywhere but they dont not love him they just know his comfort zone  and we go together. I wish you the best and i hope someday they will realize that they missed out on a lot and they will feel very sorry for that. You know life is to short to be mean or hateful and not caring for their own grandughter like they are is totally wrong in  my book.

Good luck

Misty