Hi Sonya.  Keep in mind that I said that my son is on the high end of the CAH spectrum.  Not everyone with CAH reacts the same, but my son goes down so fast that I know we would lose him within just a couple of hours if we didn’t give him the shot.

Keep in mind that these kids throw up, have diarhea, sweat (either from fever or from being bundled up AND they are dealing with stressors that they are not as well equipped to handle as a non CAH child.

These are all the things that we really want to keep them from doing.  They can cause dehydration, anxiety and panic situations that can all exhaserbate the issues with the adrenal glands and send them into an adrenal crisis.

It is just my opinion AND experience that giving the shot errs on the side of caution and that is always the better way to go in these cases.

I have spoken with a few parents who wished they could have a second chance to give the shot.  When it’s too late, it’s too late!!  I will never forget the day that the Yale docs told me that he probably wouldn’t make it through the night.  I knew right at that moment that neither would I....or at least I would never be the same.

While I understand that giving the shot is not the easiest thing to do, I promise you that the sight of your child running around and laughing within minutes of the injection makes it well worth your while.

Why don’t you just give it a shot once (no punn intended) the next time he is sick and see what happens.  I feel pretty confident that that will lead you to your own conclusion.

Again, I will keep you all in my prayers.