re: to carol
Jan. 14th, 2006   10:50pm

Hi, Thanks, I did see you post last time. My potassium was very low when i was on four Florinef morning and 2 night. I have now taken myself down to 1 morning and 1 night and the same for Dexa. It is thought i might have had the damage to the heart for years and i have only been on the potassium for 2 years. I still have to see the CARDIOLOGIST to find out more yet. I see my endo on Monday but he thinks everything is just in your head but i have all the results in my records from my SVT episodes so he is going to have to listen this time. It is going to be an interesting visit but I will post and let everybody know what happened. They think they know everything about CAH BUT HAVE NEVER WALKED IN OUR FOOTSTEPS. It would be interesting for them to go thru what we have to go thru instead of getting everything from textbooks. which is all about us.

I will be talking to my local doctor as well after the visit.

Thanks again

Stay healthy, Stay strong

luv jayne

jayne
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