I live in California.  I have something called California Children Services.  I am also on medical/healthy families.  I was informed that if I ever have insurance like blue cross, aetna, whatever, that I could still have CCS and CCS is what pays for Ashley’s meds, endo appointments, hospitalization due to CAH, bone age test and bloodwork for CAH.  This program is for people that have life threatening illnesses/conditions.  See if they have something like this where you live.

Good luck,

Lisa V.