Alicia,

I know it is scary when you first hear that your child has a medical condition.  It was probably a shock plus I’d be willing to bet that you probably never heard of CAH before you found out your son has it!  That’s how it was in our case.  My 2 year old son has CAH and I’m currently pregnant with another boy who has CAH as well.  After we got over the initial shock and sadness life has been much easier!  Our son takes medicine 2x’s/day - other than that you would never know that there is anything "wrong" (for lack of a better word).  He goes to his Endo every 3-4 months and has labs drawn as well.  His pediatrician is still amazed he was diagnosed with SW CAH because his body has responded so well.  She always tells me that her other patients come in much more often than my son does and they don’t have the CAH.  I can’t say that I don’t wish our son didn’t have it, but compared to alot of the other diseases/medical conditions out there - CAH seems to be one I’d rather have to deal with.  Every child with CAH responds differently, so just make yourself educated as much as you can regarding your son’s body/symptoms and the CAH.  Be careful about what you read on the internet - sometimes the internet does more harm than good!  Get good info from your doctor.  This board is wonderful - it allows you to meet others who can relate to your situation. 

Please feel free to email me at jprex@sbcglobal.net with any questions/concerns you may have. 

Jen