This is my first time to this site, I’m sorry it took us so long to get here.  I have spent hours reading everything written by everyone, and have found myself in tears knowing what so many of you are going through.  We have two children an 8 year old son named Cody, and an 7 year old daughter name Callie, both were born with CAH and are cortisol dependent.  From talking with the doctors I thought I knew most of what I needed too.  But recently we attempted to get the kids each a $25,000 life insurance policy and were denied coverage.  As well, our 8 year old is growing quite a bit of genital hair and we are very concerned, but were told that it looks normal to him.  If this wasn’t enough, for the last year we have been battling joint problems with our son.  He has bursides (sp) in his right knee as well as problems with his ankles and occasionally his back.  Last week the specialist decided to do a MRI and some blood work to see what might be happening.  I’m lost for words and grieving over why we haven’t been doing a better job of researching CAH and learning more about it.  If anyone else has experienced any of the above could you please contact us.  My heart goes out to you all.  Thank you for your responses.  Pat