Sherry,

I’m so sorry to hear all the problems you had. Like everyone else said we should not have to go thru this! If a child was a diabetic they would immediately get the insulin!(jjust an example) It’s not always easy. I’m a panic person but have learned in these 9yrs to do what is best for my SWCAH 9 yr old as far as the shot goes.

As I was reading your post you said you gave the  the solu-cortef to the Dr. or Nurse (wasn’t sure which one) but still wasn’t sure how to do it.  The Cares Foundation sent me a brochure with all the info on adrenal crisis and it has step by step instructions for giving the shot. IT IS WONDERFUL! A place for all phone #’s etc.

We did go to the ER a wk ago. My SWCAH 9yr old had severe stomach cramps and I thought he had the stomach flu going around. I tripled the dose 1st. He kept it down which is a good thing. Then he started getting worse. I always 1st thing call the hospital to talk to the ped endo on call & explain the situation. They will suggest to give the solu-cortef or wait. I have done this both ways. Depends on the sickness & my child. Then I call my childs endo enroute to the hospital. When we arrived to the hospital they have all the information on hand. Thank goodness we have never had to wait. They took him in right away. Got an IV, administered the solu-cortef and found out he was constipated. Gave him a supository (can’t spell). Immediately he went to the bathroom. THey kept him until he received all the fluids & he was back to being himself. I’m so glad that was all it was.

I just wanted to mention one other thing. One day he woke up slightly unconscious, not aware I freaked. Was fine the night before. I got the solu-cortef & the needle broke. I didn’t have another one. Like I said I panicked. I call 911 non emergency. The fire dept. came within 3 mins. Gave me a new syringe and walked me thru the process. Within 5 mins. he was back to normal. That is how we got to know our local firemen real well. Gave them all the info on him & they time to time send us a note making sure things are going ok. Also are local EMT’s are aware of the situation. At any time they will come & assist with the shot. If they give the shot they have to transport him. BUt you can always call them to help. I feel it is very important to get to know these people in your local area.

Sorry just wanted to give some info. Please take care & get some rest and I hope your child gets better real soon. YOu have had alot going on. Also it is hard giving the shot but it does get better.  Remember you are your childs advocate & you go above & beyond until they hear you!!!!!!!!!!!!!!!!! If that is the hospital you always go to I would definetly call your ped endo & make sure that hospital has the vital info they need for future visits.

Take care