M.RHi Margaret, I’m surprised no one responded. You seem to have late onset cah. You didn’t say how old you were when you were dxed. This condition certainly effects everyone in different ways. I also have late onset cah. I don’t have the exact problem you have, but I had a very hard time delivering my children due to a small and low pelvic area.
I have a very nice family doc that prescribes my Dex. He will be leaving in a year so I’m not sure what will happen. I hope his colleagues are just as nice.
Good luck