Hi Marcia, I’m assuming your daughter was dxed near after birth? She has saltwasting cah?

 Since you are looking into alternatives, your daughter may be one that will fair well with the new pump I have read about on this message board. I forget the names but maybe someone can help you out with that. I think it’s still in experimental stages.

 Also I think that Donna from Ky has had this done and she is having a hard time with her health. Not saying everyone will, but there are also drawbacks to the procedure. Plus no one seems to know why it is happening to her, thats the scary part.

 Out of curiosity what are the 9 pills?

 Anyway something to think about......take care