Yes. They knew something was wrong right away, but she was four days old when she was diagnosed. We had an appointment yesterday with her endo. My husband and I have been doing research on the internet and even talked to another doctor in NC who we were referred to by my daughter’s doctor for a second opinion. This doctor said that adrenalectomies were promising, but the candidates should be classic CAH which, my daughter is. At her appointment yesterday, we brought up lots of alternatives that we have read about. Her doctor said that he would look into some (ex. time released pills), but she had horrible results with dexamethosone and he’s kind of reluctant to put her through that again. She got huge acne bumps, grew sideburns, and gained about 20 lbs in six months. She also quit having her periods. When we added the adrogen blockers about six months ago, things improved. Her face cleared up, her facial hair disappeared, she started her period again, and while she isn’t losing, she  stopped gaining weight. The main problem is she doesn’t feel well and she has no energy. Not to mention I’m afraid of all the meds, especially long term. She takes cortef 3 times a day, florinef twice a day, flutamide 3 times a day, and femara 1 time a day.  We asked her doctor about the pump as well as circadium dosing. He told us that the most important thing about dosing was to take it as close to 8 hours apart as possible, which we already do. I even wake her up at 11:00 for her last dose because she can’t get her afternoon dose until she gets home from school. He said some methods worked well before puberty, but not after. We didn’t start having problems until puberty.  This site has been extremely helpful for giving us alternative ideas. We’ve been wearing him out with questions. He really is a great doctor, though. He’s very thorough and very knowlegeable. I guess that’s why I keep leaning toward the surgery, because that’s what he recommends, but suggestions for you guys have been extremely helpful and appreciated.