From my daughter that has SWCAH:

One day I was telling my daughter that is now 8 years old that they are so close to finding a cure for CAH. I told her about the pump that can be used like the diabetics. I asked her if she would wanta a pump like that. Her reply was, "Mom, so what if I take a chewy pill a few times a day. What is the big deal? I am like any other kid."

It makes you wonder, is CAH a good thing or isn’t anything at all to a kid? WHICH I think if it isn’t anything THAT too is a good thing.  

 

Another day when she was about 5 we went to the Children’s Hospital for an entire day. I decided to make all her tests and appointments so we didn’t have to spent an entire month going back and forth. She had her bone age done, her blood work, an endocrinologist visit, a urologist visit, and an asthma clinic. Each visit they gave her some little treat. We were on our way out of the hospital after the very long day and I was feeling so bad. I was in my own world. I was saying to myself, "There are actually parents in this world that have never even seen the inside of this hospital and never will. Why does MY poor daughter have to endure this crap, ......" I was interuppted when my daugther, who was skipping along side me said, "Mom, I am the luckiest girl in the world!" I almost cried. " I replied with tears in my eyes, "Yes you ARE the luckiest girl in the world!" and I am the luckiest mom in this world.

It is all a matter of perspective.