Laura is so lovely to read your daughters views and I do hope with all my heart that your daughter remains well and feels this way.  I would say my son when he was young felt this way too but then he didn’t realise how he would feel when he was older... how loss in height would upset him - he believed what the doctors said, (so did I) in that he would reach a good height and why not - he took his tablets. How he felt when he gained so much weight from the different medications he was put on - the acne he got from dex.  Read some of those posts from the teenagers who use the kids board - that post from the young lad who was so desperate about his weight, will remain in my memory forever.  Puberty came along and my son did not do well, he was so ill because he was metabolising his tablets too quickly, and not absorbing the hydro - there were days he felt he was going to die - he had no quality of life - for two years he could not go to school, he was desperate, his spine became deformed, he had no muscle tone, he was fading away, some days he was too dizzy to sit up. Then through the hard work of his endo - he started the pump, it has changed his life........ but he will never love having CAH, he feels he had 2 years of his life stolen - and he can see no good in it, the worry and stress it has caused us as a family. Yes his case is extreme but then I can understand why Anon posts......... it isn’t self pity, it is utterly heartbreaking to see your child so ill and not being able to help - the doctors not being able to help.To see your child bullied from weight problems from too much medication........ My son accepts the pump, he wrote an article recently and his words were - "My life is in the hands of a tiny computer, a pump designed for the delivery of insulin in the treatment of diabetes", how true that is. I suppose I could say, well the one thing that is good is that the pump has been developed but even then most doctors are not even willing to entertain the idea  - the chance of perfect levels..... I can also say it is good that my son survived but why should it have happened to him?  I think the post AMZ has written on the board is so true, and I am truly pleased for all that can see having CAH as a blessing, but I cannot and I would never wish what my son has been through, on anyone....... and I am extremely grateful to those adults who post on the board, so we can all learn. I do think this has turned out to be an excellent thread....... and I have copied AMZ’s post as not many posts have touched me as much as hers and I haven’t had to deal with surgery issues.  I am not angry, just sad that things have happened and agree with AMZ.