aimeeI think the first post was in the same field as cancer jokes.....it’s been a year and a half since the rad and chemo. I don’t think having CAH is a good thing or cancer and I never will but this thread is cute and meant to be that way. I don’t really know how much has changed for CAH - when I was in another ER - just after finding out about the cancer ...the head nurse upon me telling her about CAH anf the affect of the adrenal gland also goes that hermaphrodite back in our text books ....i tried to explain yeah some pseudo hermaphrodite but they really don’t use those words much and it doesn’t apply to everyone....it’s an Endocrine condition.i tried to explain but smile on her face made me give up. What is her name Ms. Baker? the one from Penn State and her CAH a study of Intersexuality ...I don’t see any of that going away anytime soon. It was the paramedic that gave me support that yes, I would get through the cancer and that his family had cancer and they were doing fine. I wish the nurse would of done the same.
I thought going through the cancer treatment was cake compared to everything with CAH but that is my experience.
I knew someone that went down in those towers. He was larger than life and I knew him for a short time but I think about him everytime a fire truck goes by and how he was always happy and joking. It’s not fair that he had to go so soon at 32. I think about those with CAH that died, I think about those with my cancer that died - sometimes test are incorrect, I think about that firefighter that isn’t here anymore, I partied w/ people from Hurricance Katriana LA when they came to Florida- you could still see the shock on their faces from what they had witnessed but darned if they didn’t request rock you like a hurricance : P
Back to this fun post-
One could say that because of CAH that you become real good at directions from trying to find departments at the hospitals. X- Ray? Ohhh..... lets see- you follow the blue line to the end of the hall and take a right where you pick up the yellow line and keep going until you pass the garden ......there shhhh ...you will find a door open the door go outside ...careful watch the bats errr birds ...go through the door on the left on the outside of the grey building .....there- follow the maroon line soon.....you will find a small door the same color as the wall- open it- and go up that stair well- open the third door on the right next to the orange gargole and there you ARE ! X-Ray.
I kid you all not ....my Mom and I actually went through a small side door in a wall @ that place.