Dear Tina, Elizabeth, and Hope~

Thank you all for the kind words.

I don’t believe in any good of having CAH but I do feel that good may come out of it and that does mean something. I like being here and writing - Plus, I think it matters that when a parent finds out that their kid has this that they see a couple of generations that post with it. And all different types of people and experiences also. I’m not as polished as many with CAH and I like this board ....well because it keeps me out of trouble ; ) I’ll never filter my feelings about this condition nor do I think your kids will have the same feelings our experiences that I do or did. Another reason why I write is because those research articles make me sick and I thought that really writing about true experiences would some how be better. I think your kids can do anything they put their mind to. I think it makes it better that we know other people that have the condition. I never talked with anyone that had CAH until I was 31 and that really is unfortunate - We even went to the same Hospital.

 

Some of the stuff from the past was craptacular but born 20 years earlier would of been worse. 

I like the time line of CAH from the 1950’s until Now.  

Tina, I think that is very classy of your little girl saying thank you after the blood draws.