Brenda SmithNatalie:
Nic has been going since he was 8. You really see the nurse’s more then the Dr.’s and they were usually always great. You would see the Dr. once and a Nurse Practitioner to ask ? and do an exam. Nic has never felt like a body to probe. They were always caring about exams etc.
You stay at NIH the hospital, if you have free time they will let you leave and go see things. We usually can go places because we come from Canada and we have to stay over Sat. night. Some days are really busy and some aren’t. It takes about 2 days of tests.
We are going to continue to go to NIH for as many years as Nic wants to so it is a great place. It is worth going, they have really got Nic’s CAH under control.
Feel free to ask me any thing you want to know Brenda