My honest thoughts on this are that having a child with CAH for me has brought certainly more anxiety about my son’s health and future, than that of my children who do not have it.  Our journey and experiences with CAH has been difficult and sometimes I get feelings of such desperation that I cannot fix what is wrong with my son.  I have learnt along the way, not to put my absolute trust in the medical profession, to question, re question and not accept issues they feel were said not to be related to CAH and later have been proved to be. I am sure this leads to bouts of depression but I think this would happen with anyone who has a child who suffers or hurts and it is easy when things are not right, to be almost consumed by the issues.  I have found great comfort in the friends I have made, who also have children with CAH, as I feel we truly understand the anxieties we share. Perhaps through not being able to really understand CAH, with doctors being even unable to agree what an optimal 17 OHP level is, issues of surgery etc - all this increases our anxieties, I firmly believe they do not have all the answers as this is such a complex disorder.  I am very thankful to those doctors who are willing to learn from patients and us as parents - not only from text books. I find it hard to believe that carrying such a faulty gene cannot have some health issues.........  I will be very interested in studies in carriers..........