Laura,  Hi my son is 9 and has non-saltwasting cah.  He gets terrible knee pains from time to time.  Our endo didn’t think it had anything to do with his cah but we started tracking it and found that he started getting more when he needed to have his meds uped.  So now she asks about his knees when we have a check up.  We go thru alot of children’s tylonol at our house.  Good Luck!!