hi christian

my grandaughter alex was born 5 years ago. and it was the same worry and concern that you are going threw. but it will get easier. it is very scary not knowing what is going on right now. use this board as much as possible. you will get alot of info that will be really helpful. the first few years were hard, getting her to take her meds all the time, being afraid of what would happen next. but she did really well, and now she takes her meds like a pro, does her blood draws with out crying, goes to kindergarten and loves it. so it will get easier, but i know that those words do not help alot now, but just stay strong, stay on this board, and you and your wife will learn alot. both of you take care, and don’t be afraid to ask the questions. your daughter will do great