Congratulations on the birth of your new baby girl!  I know this is a scary time for you. My husband and I have 2 daughters, 8 & 9, both with the severe salt wasting form of CAH.  They are both happy and healthy and are involved in sports and activities.  I know this may be hard for you to think about now but I really want to let you know everything will be ok.  I hope you have met with your new endocrinologist and have had things explained clearly to you.  In hindsight, I would have had a family member in the room with us during those visits taking notes.  I was so confused as was my husband.  This was all before the internet was in almost every home.  I know you are busy but when you have time, go to CARESFoundation.org.  There are group leaders for California that could point you in the right direction as far as physician referrals.  You can also find there so much wonderful and valuable information that may make things easier to understand.  And come to this board with questions.  The people here are wonderful and knowledgable.  Please don’t hesitate.

I would think they would be treating your child as if she has CAH while waiting for diagnosis confirmation.  That is what they did with my daughter.  If they are doing that, then there should be little concern for her going into crisis.  They had Abby on an IV with extra sodium, cortef and florinef.  Our 8 year old was diagnosed while I was pregnant with her so there was plenty of preparation and no extra hospital stay.

I will say a prayer for you and your family!  Please give us an update and ask as many questions as you need. 

Blessings,

Tonia