LOOK FOR AN ENDOCRINOLOGIST.  I DRIVE ABOUT 100 MILES TO SEE MINE.  SHE HAS TO SEE A DOCTOR WHO UNDERSTANDS CAH.  WHEN THE POTASSIUM IS TOO HIGH, IT MEANS HER MEDICATION IS NOT RIGHT.  WHERE DO YOU LIVE, THERE ARE PEOPLE ON THIS BOARD THAT WILL HELP YOU FIND ONE NEAR YOUR HOUSE IT MIGHT BE 100 OR 200 MILES FROM YOUR HOUSE, BUT YOUR CHILD NEEDS AN ENDO.  GOOD LUCK MAY GOD BLESS YOU AND YOUR FAMILY.