Non Classical Ad. Hyp.
Mar. 13th, 2006   10:09am
I am looking to speak with other families, members, females, males, that have Non Classical Adrenal Hyperplasia.  My daughter, who is now 12, was diag. at 4 with this and we have been working with the CARES foundation in helping us to choose the right med’s for her.    If anyone has this or has a child with this i would so greatly appreciate talking and comparing notes.  ALso, would the Late Onset also be the same or close to the NCAH?   Also, I am the Pittsburgh, PA contact for the CARES foundation and I am attempting to start a support group here in Pittsburgh.. It has been difficult in doing so,  our Endocrin, wasn’t very helpful and i’ve been hitting alot of dead ends.   Any help would be greatly appreciated.
stippy4
Rare Disease Search Engine, Homeschool Sites, Online Homeschool, Online Income, Ethical Adsense, Creative writing, Family Web Hosting, Christian Radio, Tulsa Parks