Cathy:  Sounds like you were diagnosed with LOCAH, not classical CAH, right?  Don’t worry about any surgeries, just keep learning as much as you can and find a endo you are comfortable with.  Working with CARES has been an eye opener for us.  Talk to them on a regular basis, if and when you can.  CARES and this web board is a wonderful source of support.  Also, check out the LOCAH page and read, talk, read, talk, read, talk!!!