Misty:  I e-mailed you at jmkufmer@aol.com and it did not go through.  Anyway, nope, Clark’s lips never turned blue.  The more I learn, the more I realize that CAH is very difficult to treat and there are a lot of secondary issues associated with it.  The only thing I know about growth is that both under & over treatment can stunt your growth.  Its a fine line.  Bone age films and labs done often are the only options I know available to monitor.  Hang in there!