Michelle, 

One of my two daughters has CAH, she is 23 years old.  She has been on Cortef since she was 11 months old, when they finally found out what she had.  She is less than five feet tall very petite but so is her sister.  When they found out what she had they did a bone growth xray to see how tall she would be when she grew up, they told me around 5’6.  I don’t think that they were incorrect, her medication was inproperly prescribed (not enough) she took about three times less then she needed for 7 years and that is why she is short.  Very important to get a really good endo.  I found one at the City of Hope, CA.  she is a wonderful doctor, she currently only works out of Childrens Hosp. now.  Anyway if you have any questions feel free to contact me at rgentry155@aol.com, my daughter or myself have been there did that.  Don’t worry your daughter will be just fine,  you are lucky that you have this avenue of support, in my day it took them 11 mos. and several doctors to just find out what my baby had.