I have recently read that most CAH children are treated with hydrocortisone (cortef) which is a short acting glucocorticoid & that longer acting glucocorticoids such as prednisone or dexamethasone have potential growth concerns so are not used as often for young children.

I was following the thread about CAH kids that are tiny & slow to grow. My daughter is one of these kids, almost 4 yrs old, weights 27lbs, & is 35 inches tall. She has been on pedipred since first diagnosed, (current dose 0.8ml 3times a day)

I would like to do a little research on my own & inquire to all of you with tiny kids to respond to this post with age, weight, height & type of glucocorticoid they are taking. I am going to ask my Endo if maybe we can switch to cortef. Whenever I ask her something she often responds with "why would you want to do that?" or "why would you ask that?" That’s why I want to get info on this before we see her.

Thanks for any help on this.

Diana