MarthaMI have two SW CAH boys, one tiny and one regular size. My tiny one has starting growing more, still small though. He is seven and is 48lbs and is 48 inches, he was only 18lbs at 1 year old, the nurse would not write down his %’s as he was not on the chart....he is 25% for height now and 50th for weight. He is smart and funny etc...still the smallest in his class. He takes 5mgs , 2.5mgs and 2.5mgs. His brother is almost 10 and weight 67lbs and he is 55 inches tall, he takes 5mgs, 2.5 mgs and 5 mgs of cortef. He is tall and skinny, 75% height and 50% weight. Both boys levels have been mostly good. The older one was way oversuppressed (too much medication) for the first year of his life.
Good luck.