Steph, I am a mother of a teenager who may have LOCAH or may be a carrier, so I certainly have no experience with what you are going through. However, I found your blog very informative and interesting, just to understand a little of what it must be like for some. I also think it was very brave of you to share it. I’m sure it will be helpful in bringing understanding.

I have a question. You said that you lied about your period for 2 years. How and why did you lie about it? It’s not clear to me. Thanks.