re: re: re: Aimee
Mar. 28th, 2006   7:04pm

 Hi Aimee........hope you are doing well. I soooo agree with you that the thought of assuming that Doctors and mediacl profession will have no interest in ones genitals that have CAH is indeed a foolish assumption on my part. Better yet ...wishful thinking. We still get Drs. wanting to take a peek of Mitzi now and again. I usually intervene with a comment that your going to have to take my word for it that she has no pubic hair and she is looking normal. I have become so adamant about the peek and see game that they just look at my face and KNOW that we are not playing games here and that this can pyschologically damage my Granddaughter forever. This is what I have learned from you being straight forward and honest about your trauma as a young child and adult.  I can’t imagine how one must feel having the choice of your body being on display taken away from you. The underlying anger must be horrific. I KNOW it would  be for me. It is bad enough when one has to deal with sexual abuse from ONE abuser I can’t imagine feeling numerous people are doing this over and over and calling it medically  neccessary. GRRRRRRR! Makes me angry thinking about it. I do wish you would write a book and share your stories with parents that have NO CLUE!!!! I have learned so much from your posts and feel your pain in some of them.....you do GREAT at disguising most of your pain and anxiety about your medical experience...but when you write from the heart it comes through. This is when I want to let you know how much you are helping people and don’t even know you are. You have conquered the demons that scarred you and still have the kindness and intellect to want to protect others. How much more giving can a soul be? Without posts like yours and Stephs and Chloe’s and other young girls and young adults we would not have any idea of what the medical profession could do to our children or ARE doing to our children. You give us insight and knowledge on HOW to protect and guard there privacy and at the same time teach us to be open to questions and discussions that most of us would like to bury our head in the sand and pretend this will not apply to MY child. I have always admired you courageous effort to speak about your trauma and let us see how much you work at protecting others. You have not nor do you dwell on self pity... you accept what is and share the facts as they are............many times over Thank you for being part of this board and part of our lives in making our childrens future as bright and normal as we can. You give us hope that regardless of what our children go through they can survive and have a true healthy spirit when it comes to giving back to others. Keep up with the honest and forth coming posts that put the CAH world in a REAL perspective.

 Thanks Aimee

Cherry

Cherry Lane
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