Dear CKL and Rashmi,

Unfortunately I do not visit this board as often as I would like, and by the time I post a message it gets lost deep down the page!

I am not sure exactly where in India you are both from, but CLAN (www.cahclan.org) has been in contact with a couple of doctors in India who have an interest in CAH:

http://www.cahclan.org/displaylinks.php?pagecat=india&id=92

as well as some families living with CAH:

http://www.cahclan.org/displaylinks.php?pagecat=india&id=91

A more formalised CAH Support Group system is still in its infancy. A couple of doctors in India are currently assessing interest, but are not sure if the concept would be that culturally appropriate or sought after. If either of you were willing to liaise with CLAN or had opinions on all of this I’d be very keen to hear from you (kate@cahclan.org).

Kind Regards,

Kate.