KateDear CKL,
Thank-you for your response - I am so glad to meet you too!
It is wonderful news that you are in contact with Dr Bhatia - a highly respected doctor! I am sure you will have good luck with your child’s treatment now. We were in contact recently, and I believe Dr Bhatia is also starting discussions with patients and families into how useful the CAH Support Group concept would be in India, so I’d be interested to hear the outcome of this.
Please let me know if CLAN can be of help to you and your family in any way. CLAN is only starting to learn more about CAH in India - we still have so much to learn - but I do understand that it can be a very difficult road for many people. I apologise if I may not always be visiting this Message Board (I will try!), but you have my contact details if you need them.
Take care CKL, and thank-you again for sharing your news.
Kind Regards,
Kate.