Hello,

Danny, I had mentioned about CLAN last year itself, perhaps u might not have noticed it. It’s useful for Indians as it mentions few docs although not all about Pead Endo. in India. They a very few in no. Also only one pharma manufactures HC & Florinef that too a couple of years ago. Otherwise we used to import from UK & US. So this site is useful for newly affected parents of India for a bit of info.

Katte, I  really appreciate ur memory. U seem to be quite concern. Are u somehow related to India. Are u Australlian? Thanx for helping C.K.L.

Joanne, my son got seizures at the age of 2 months when he was seriously ill without treatment & undiagnosed. Seizures let docs think about this rare disorder and then they screened him for SWCAH and then he was diagnosed. They said that his sodium was low & potassium was too high which led him to seizures. They said If he was left untreated even for one more week this would have damaged his brain. This is what C.K.L. also suggested.

C.K.L. I am glad that u found a doc for  ur son. I belong to Cental India. I would like to discuss u more in terms of India scenario. My e-mail id IS rashmi_wpr@yahoo.co.in