aimeeJust wanted to add that yes, the blood work is the palce to look first and that just may be where this is all coming from. It’s a teeter- tatter / much better like ____
I’ve been seen by the Endos at the best education centers - w/ the most advanced info about CAH and never was the blood work and issue. Except for the time where I decided not to take it for awhile became sick from doing that. The endo I have know also went to school where CAH was a focus. So the blood test are fine with all them and come to se ethat sometimes because of my genetic makeup and the reaction I sometimes do have the rage that you write about and Like you wrote it’s not really a tantrum (that is the point that caught my interest) i think it can out more often with the pred than the hydro now. On the flip side of it i would be called bubbley and out- going but also with this side. When others get rages- it doesn’t bother me like at work this guy was all raging - he also had a point and i was like yeah dude ....sir.....I do understand and he looked at me little me and understood that I did. This one nurse is like I want you to be happy and I’m like what ever gave you the idea i wasn’t? if I ain’t ranting and raving at times ---- well then I’m faking being someone else. i don’t rant and rave ..rage at times around some becasue they get frustation and think they have to fix it ...I hope this is jsut a jid thing but if not then at least you know that someone w/ CAH can relate. Anytime my cortisone is low....I feel ill. I think also sometimes for me that the rage doesn’t need to come out because I’ve had a small snack and thus no hypoglycemia. Nothing is stressful after I’ve had chilli. I’m a helpful person also even though I might have this rage stuff. I was behing a guy on a busy street where i live and the load of shelves the guy was hauling in his truck slide out the back and landed in front of my car plus the middle of the intersection and the line behind him at a busy intersection just before getting on the freeway and I got out of my car - telling THE BIG MAN let me help you and as I was pulling the shelves out of the intersection the light turned green and all the other cars and trucks just TRIED TO yell at him little snipes and such. I cused them out for doing that right back and stated they should help also - they shut up real quick and took off. The guy was huge and shocked that a little woman stopped to help him and could pick those sheleves up quick - I could of gone around like everyone else. These personalities focus in the right direction are a good thing -I remember "yelling" at one endo because he cared more about the drug reps then the patients he had waiting for 3 hours. Nice guy and still liked me but needed someone to nip at his heels - the other patients clapped.
i so wish that studies would be done about all this and may be they will. i’ve seen other parents write about this also.
I’ve often wonder if it’s becasue of going thru the university med system and having a cronic condition and just because of the cronic condition one just gets fed up and blows when sometimes that isn’t in our best interest.
PEACE