Hi Aimee,  Thanks for the reply - I have to say I agree with you!  I am quite happy for CAH to be classed as a metabolic/endocrine condition as it doesn’t cause the confusion/embarrassment that being lumped together with other conditions affecting the sex hormones does.  As you rightly state, less than 50% of people with CAH actually have any genital abnormality, yet this is the aspect the medics focus on - why???? 

As I said before, no-one from the CAH community was actually invited to this meeting, which was commented on by Kelly in the last CARES newsletter - shame eh?  Whilst I was pleased they took on board our disagreement with the term intersex being associated with CAH, as to my mind this implies ’between the sexes’ which is just not true, I am not convinced the new term is much better!

On the bright side, the rest of the paper focusing on management, treatment and psychological support couldn’t be faulted.   I shall pass on your comments and any others posted on this board as together we are a stronger voice - thanks again!