re: re: re: re: re: Consensus Statement on Management of Intersex Conditions
May. 10th, 2006   9:03am

John Hopkins, I believe is the place that always had  "Errors of Sexual Development" whatever Oh you mean hermaphrodite  but it still does what Jen in the above post wrote and Love you Jen! because what you wrote was perfect.  The word CAH should say it all and is all enculsive of what may happen. What the heck are those genitals are a symptom of CAH ...the egg or the chicken what’s it gonna be? Even the one nurse asked waht are the symptoms of CAH.

I like the future of CAH ....Like um for sure umm they gots were it all be coming from so why not CALL it from the source? Besides again without any feeling but on paper How do the majority present? Was told the way I was born was rare within the spectrum of CAH but this is waht is defining the condition. When is CAH going to grow into being an adrenal gland condition standing next to everyone with wacky thyroid conditions? They have gather enough knowledge to generally follow the progress of this condition but it’s like stuck in this certain point and that to me isn’t right becasue it doesn’t represent the whole condition sure if it wasn’t for someone born like me the the rest of the info wouldn’t of been gather the way it was but it comes a time for the condition to grow as a voice and not lose the past or what a small part of the condition is but still grow just the same.

I’m a smuck but I’m much more interested in finding out about those rages you all write about than being a curiosity peice anymore.  Being a curiosity for CAH means good luck getting any other conditions you have diagnosed in a timely manner. Been there and done that - ain’t dead yet. So would like to see CAH beome so common place that it bores the medicos because they are so aware and then can get into treating you instead of being excited that here is something that just walked out of the medical journals - I get cranky when that happens because nobody wants to be someones christmas present " I’VE BEEN IN PRACTICE EIGHT YEARS AND I’VE NEVER SEEN ANYTHING LIKE THIS!" okayyy ...is it to late for me to leave?

Where is thread going to go in the real world ..anywhere?

I don’t have the say or pull ...the voice and in fact those that matter don’t  like me much anyway ...I’m to real about CAH  but maybe they’ll consider this thread an actually do something.

Ain’t be much O mystery at all ...just the adrenal gland and the victorain docs should pat themselves on the back for that along with all those with CAH that came before.

"Inspite all my rage I’m still just a rat in the cage" love that song and play it loud.  

aimee
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