Just like the rest of the CAH world , I dislike the term intersex  being used in conjuntion with CAH. I honestly don’t think the NEW terminology of the description for CAH is much better. BUT IN THE REAL world..how long did it take for the medical community to stop calling downs syndrome children ..mongoloids ? Children are no longer retarded they are  labeled special needs children. They are not crippled they are handicapped. It is what it is and trying to get it to change in this generation may seem EXTREMELY difficult. BUT......... if we continue to MAKE ourselves heard by the medical community IT IS POSSIBLE!!! First we must clean up our own backyard. We NEED to read our childrens medical records and files and any terminology in them that we FEEL is degrading or WRONG regarding our children. DEMAND that it be changed. Sounds like a trivial thing ...but if WE don’t care enough to correct our childrens Doctor’s on the use of wrong language and definitions to describe our childrens health...IT WON’T HAPPEN!  Obviously, the consensus compiles tons of medical records for studies such as this. WE NEED TO CHANGE WHAT THEY ARE READING!   Also I agree with Kelly... Why are we not being heard from? (CAH voices)  They feel we have enough voice to  group us in the intersex conditions, but not enough voice for the endocrine conditions.  The bottom line is the squeaky wheel gets the oil and someone is squeaking on our childrens behalf with words , labels, conditions, categories,  and medical terminology that WE find harmful and mistaken when it comes to the care and welfare of CAH. Who do we confront with the frustration and injustice that this is bringing our children and there health. I agree with Aimee also...... My child is sick and she needs medication ASAP or she can DIE. For some medical staff   to stand around and converse and be more concerned with her genitals than her life  is way beyond the scope of professional or acceptable with me. SOOOOOOO unfortunately the realm of how this disorder is perceived by the medical journals and professionals STILL lies within us. ALL that we do for CAH and ALL that we will continue to do for CAH cannot be afforded to fall in the lap of people who want  to  make it something it is NOT. Lets start making our voices heard....even if it is only in our Doctor’s office and in letters to the RIGHT people. CHANGE IS SLOW............BUT NOT IMPOSSIBLE!  If we are going to use the energy to express our opinions on this subject ,  lets use it to make change. WRITE, E_MAIL, CALL, FAX or scream from the rooftop. Just make sure you are letting the RIGHT people KNOW how harmful these classifications can be to our children.