re: Consensus statement on the management of intersex disorders
May. 15th, 2006   4:01pm

intellectual jibber jabber . This is the type of c### that made it harder for the other conditions like my gyno cancer to be diagnosed.  When will CAH be its own dog?  Where is the you can die without cortisone part hummmm?   

I really thought doll houses were the coolest thing never had a truck and the agressiveness is a female way ..a turbo charged female. Kids and being maternal Yes, but these type of papers would have one think otherwise - actually I’m aggressively protective of children but no we’re not supposed to have any interest.  

Embarrassed about the wayI  was born? No, but feel violated and traumatized about the treatment - take your panties off we need to see that it looks Ok ie what  we did to you yeahhh every  nine year old needs that labia pulled apart come down and push yourself onto my finger . "Just want to tak a little peek" those words still burn and they think the parents in the room made it better  yeah it was permission to be violated.

This doesn’t play in the real world on the hospital floor at 3 am Disorders of the blah blah blah ....oh you mean hermaphrodite Ok I get it now and the fact that one needs cortisol to function isn’t a focus.  

Where are the paper about CAH specifically? where are the papers that write info about boys with the condition or what happens in general with CAH? I’veread a little about heart issues because of cortisones Welll helloooo my condition want to know about that. This paper was stuff that I’ve read about for ever ........yes women really virilized do take to being women and I read about that at least seven years ago - adrenal gland connection Oh gee but always good in my opinion to wait a little to see which way one does go - at least that flipping teaching hospital did something right. Yes, female and aggressive ( have lowjack on that girl ) hehe.... these papers? whatever.

I don’t think the condition is served anymore by seeing it thru a very small focus and we are the ones that get hurt in the ER when we need help to live. I think an ER DOC IS THE closest to perfect that I’ve ever seen - you want me to stay alive and you take what I say seriously ...I love you.

CAH what are the symptoms of the majority? i was told that the way I was born was very rare within CAH and hence my interest in talking w/ parents but for the whole condition why is it being defined this way? It’s like a thyroid condition being defined by a nodule or something.

This yet the same stuff being trotted out ...nothing new and when is CAH going to be written in a complete form that is current and all inclusive of CAH.

 

aimee
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