We also live in a small town, in rural Arizona. I have a very good pediatrician who has seen another case of CAH other than ours and that is rare. In Arizona I see the Pediatrics Endo in Phoenix and they always have one that is on call, they will return your call with in fifteen minutes.

I also have a foot up, I am a nursing student so most of the nurses at the hospital know me or have heard of me. If I was to have an emergency with my son. You have to remember that not all medical professionals know what CAH is or what it effects. In all of my Nursing Text I have found one paragraph about CAH and it said that it was a genetic disease. In school we are taught about Addison’s disease. If they don’t understand Adrenal Crisis tell them Addisonian Crisis. The quickest way to get something done is have the Endo talk to the ER doc. Call the Endo from your cell if you have to and give the phone the ER doc.

Work with your local doctor to get the correct meds at the hospital for your children. When I check at our hospital a couple of months ago, they did not have it either. Our Pediatrician had it ordered.