Hi
I have a daughter who is seven and has had very few problems due to her CAH. We are lucky.
However I do worry about the future. She complains of aching bones, could be normal kid stuff, has anyone had problems? I am thinking of bone growth being effected by hydrocortisone. My other concern is with her energy levels. I think that they seem much more related to her hydrocortisone levels in an immediate sense then her doctor says it should. Also with the low energy levels comes a lack of courage to try new things, this is esspecially noticable at school. I wonder whether emotionally difficult stuff [nothing more then normal school stuff] that other kids would deal with needs more hydocortisone for her to deal with... in the same way her body would require it in physical truama. Not that I would ever give her more medication outside of doctors orders but it would be helpful in guiding her thhrough tricky times if I knew this were the case. I wonder if anyone could confirm whether they have low energy if they aren’t getting enough cortisone or if they have forgot to take their daytime dose.
Thanks