I agree 100%.  The most horrible thoughts went thru my mind when we were trying to make the decision for our daughter.  Of course it was necessary for her health, but a parent always wonders what will happen in the future.  It sounds like you are doing the best thing by researching it.  If you are interested, we went to Dr. Rink at Riley Children’s Hospital in Indianapolis, IN.  He is awesome!

 

Good Luck & God Bless You