hi jane..i completly have the same concerns as you..i also have a five month old baby girl who is diagnosed having CAH..i knew the diagnosis dec 25..it’s supposed to be a happy day coz i just gave birth then and it was christmas..here comes the news that my baby is positive for newborn screening..i cried and cried..my husband was very much worried too..i asked for a pamphlet reg. CAH and what i read there made my heart break..but then i prayed hard and i did my own research regarding it..by dec. 28 i travelled to see a specialist..a pediatric endocrinologist..they got blood samples from my baby..i waited a week for the results..im thankful that she belonged to the mild type of CAH..it really helps jane if you have your own research and close monitoring..i pray that right now your little angels are well and good and healthy..Godbless you..