ElizabethWe live on the coast of NC - in an area where the COUNTY population is 13,000 - my actual town is 741 people. We have 2 daughters, 1 and 3 both are SWCAH. We are very fortunate in our location as well as our pediatrician. We have all of the numbers we could possibly need to reach her (home, cell, emer. contact etc. . .) and she carries a couple of Solu Cortef actovials in her office just in case. She is in VERY close contact with our ped endos who are 3 hours away - who we also have every phone number for and are comfortable with our ped. One time I can remember when my oldest daughter was just a few months old, we had never seen a crisis before and didn’t really know what to look for - it was 2 am and our ped did a conference call with one of our ped endos to walk us through explaining symptoms and such.
Our pharmacist is wonderful - it’s a little mom and pop pharmacy, actually just a pop - but he has bent over backwards to make sure we have actovials and such, even staying at the pharmacy to await a shipment of actovials - we were getting ready for a hurricane and he had let the rest of the employees go home, but Fed Ex hadn’t gotten there yet and he knew that we needed it so he stayed.
All of our friends now about the girls conditions so we don’t need to bring it up all the time, such as for everytime we have teeball or soccer, it’s nice.
I guess what I’m saying is, you need to do what makes you comfortable. We were very worried when we were first faced with all of this but we did what it took to make us more comfortable and now we are fine. I will mention, there was a time with our first daughter that she was spiking a high fever of 104 in the local hospital (which is 30 minutes away) and no one could figure out what the problem was - they had put her on triple dosing and kept monitoring her for 24 hours, when nothing came back as peculiar they called our ped endo and they ordered airlift for her to their hospital - they even flew me! It would typically take 2-3 hours from our local hospital to the ped endo hospital but from the time they ordered the airlift until the time we were in her new room at their hospital was less than 1 1/2 hours.
Hope you can come to a conclusion at to what is best for everyone - good luck