re: TEENAGE CAH KIDS/GOING OUT WITH FRIENDS/TAKING THEIR MEDS
Jul. 22nd, 2006   12:56pm

Unless i am going anywhere overnight i leave everything at home. I don’t even wear my braclet anymore. if i am going to a sleepover  i take just the meds with me but if i am going on a trip i take everything with me just in case.

 

I am good about taking my meds because i know i can die without them. Although i tend not to take my morning one till atleast lunch time because i never really get around to it.

 

My parents used to be super nuts about all of that but really we found out i can take my pill up to about 12 hours after i was supose to and be perfectly fine. And as long as i triple my dose if i get a high fever i am fine without the shot. and if something happens someone will get ahold of them before its too late.

Devin 16/f
Rare Disease Search Engine, Homeschool Sites, Online Homeschool, Online Income, Ethical Adsense, Creative writing, Family Web Hosting, Christian Radio, Tulsa Parks