PamelaI really struggled when my daughter with SWCAH started preschool and kindergarten. I even considered homeschooling, but only because I felt I was the only one who could handle her needs. I met with the school nurse, principal and teacher, before school started. I gave them information about CAH (from Magic Foundation and Johns Hopkins websites.) I had a letter from the ped endo that described her condition and treatment. I live 2 minutes from the school. I had already met with the local EMT’s and they had her injectable medication on their trucks (all 2 of them!). And I encouraged my daughter to tell her teacher when she didn’t feel well. She also had a water bottle at her desk, a salty snack, and freedom to go to the bathroom as much as she needed! The nurse called me alot-but most of the time it was a false alarm. We made it through. In first grade, I got a full-time job-10 minutes from the school and 2 minutes from the local hospital. Now she’s in fifth grade and I’m not so nervous anymore. You’ll get through it! I cried when my first daughter went to school too (non-cah). Now she’ll be a freshman in high school. They grow-we adjust! Take care. Laura-Beautiful response-as always!
Pamela