Hey Caroline, (I’m sure Carol will give you a much better answer than I can) BUT what comes to my mind is that your plan is a good one. But, I would lower the doses by 2.5 instead of a whole 5mg. You could do it very slow, like lowering only one dose at a time. For example the Cortef, you could start by lowering the pm, then maybe the am, then the other(depends on when you dose) then start over again, till you get to your best dose. I’m not up on how to lower Cortef, but I know the Dex has the bejeezies scared out of me, so I would take it veeeery slow.

 Just a little tidbit that might give you some hope..since I started on Cortef (even the higher dose) my appetite is no where near what it was. After working out I would be totally famished, but I haven’t been since I started the cortef. Soooo, hopefully it will be the same for you, who knows.

 Hey, my daughter has locah too. Now we both take Cortef. I spent ten years taking Dex twice a day .75mgs. I guess it was worth it to keep my daughter from going through the same thing. You are in the shoes I had on about 4 years ago, lol. I have this board and the wonderful people that helped me to thank, because without this board my life would still be a living hell. My daughter would not have been dxed, and if she did the first doc would have ruined her life with all the Cortef he was trying to give her. Soooo, needless to say...I am more than happy to be here for you.

 I hope it all works out for you. TTYL