I’d like to add:

As M says, and as noted in my other post, levels for those with CAH are generally allowed to be higher than those without CAH. The reason being: When CAH people are treated to the point where their hormone levels are normal,"bad" things usually happen: they gain a lot of weight, they don’t grow, they suffer other symptoms of steroid excess.

These "bad" things seem to be less of a problem, or not a problem at all, when the hormone levels are allowed to go higher than those in a "normal" population. This is why standards are different for those with CAH.

With that said, I think it’s also important to realize that staying within "good" ranges for CAH doesn’t necessarily guarantee that other problems will not surface later in life, because of chronically higher-than-"normal" 17-ohp and androgen levels. (Not trying to be a downer, just realistic.)

In my opinion, one will probably pay a price, no matter which it is (unfortunately). For now, the tendency seems to favor slight undertreatment. In the past, the tendencey was to favor slight overtreatment. The recommendations may be different, yet, in anothe r ten years!