GwenFirst and foremost I wanted to THANK EVERYONE who posts on this board- you have provided more comfort and support for my family than you will ever know. The genetic sequencing FINALLY came back on my 2 sons and the docs have determined that both of them have Adrenal Hypoplasia rather than CAH. This news was very upsetting- CAH was the diagnosis we were hoping for but God works in mysterious ways.
Although my boys do not have CAH they still suffer from Adrenal Insufficiency + salt wasting (treatments are the same) and would like to ask if this community would mind if I continue to participate on this board.
Thanks-Gwen