HI JOANNE, I TOO AM EXPECTING, BUT I AM THE ONE WITH SWCAH.  I ORIGINALLY WAS ON THE DEX. UNTIL WE FOUND THAT MY HUSBAND WAS NOT A CARRIER, BUT THE CHANCES OF HAVING A CHILD WITH CAH WOULD INCREASE TO 50% PER PREGNANCY IF HE WERE.  SINCE HE ISN’T, MY ENDO. TOOK ME OFF OF THE DEX.

I THINK IT IS REALLY A PERSONAL CHOICE TO GO ON THE DEX., SINCE IT IS NOT AN AUTOMATIC FIX FOR THE AMBIGUOUS GENITALIA.  I WOULD HAVE CHOSEN TO STAY ON THE DEX. IF MY HUSBAND WAS A CARRIER UNTIL WE FOUND OUT THE SEX OF THE BABY.  THAT IS JUST MY DECISION, BECAUSE I HAVE LIVED WITH THE EXAMINATIONS AND STARES FROM DOCTORS CURIOUS ABOUT WHAT THE GENITALIA LOOKS LIKE AFTER SURGERY.  IT MADE ME A LOT MORE SELF CONSCIOUS CHANGING IN PHY ED CLASS AND AT SLEEPOVERS AROUND OTHER GIRLS THINKING THAT I LOOKED DIFFERENT.  I KNOW THAT IT WOULDN’T NECESSARILY BE A FIX IT ALL, BUT FOR A GIRL, IT MAY HAVE DECREASED THE SIZE OF THE CLITORIS AND LABIA IF SHE WAS AFFECTED WITH CAH. 

THE DECISION IS REALLY YOURS TO MAKE, AND IF YOU ARE COMFORTABLE WITH CAH, I SEE NO PROBLEM IN CHANGING YOUR MIND NOW AFTER TWO CHILDREN.  I THINK SOMETIMES PEOPLE HAVE THE IDEA THAT THE DEX. IS A FIX IT ALL FOR CAH, AND THAT IS REALLY NOT THE CASE.