aimeeDear Melissa,
I’ve often wondered this in my own life- w/ CAH and other my other conditions. It could be anything with your son but I also wonder some times if because of conditions that we aren’t expected at times to get grumpy and act poorly. I think of all the kids that I pass in the malls that are on the ground having a fit as the mothers either are embarassed or going Alright I’m leaving you. I remember as a kid that for one example my grandmother turned off the TV as I was watching it and I went up to my room in a huff but I woundn’t of done those antics around my father because I knew that I wouldn’t be able to push his buttons.
The blood work was always fine and it may not be for your child and get it checked but remember that nothing is perfect. Blood work that is fine ..is blood work that is fine for CAH.
What also helped was that my parents got me talking and expressed how my actions ...just wasn’t going to fly and what else they did was to establish empathy where I don’t like other people to feel bad. Why are you talking like this to Mommy everything oK ? Yes fine .....I often think we need to blow off steam. I was in the hospital for my Gall Bladder and stuck there becasue it was as i found out a really bad infection but I was so edgy because I was for me feeling good and pissed because I was at a hospital down on the beach and the fun was across the street - I told the nurses that I would come back but I knew i couldn’t leave because of the ouzing puss which was cool coming out of my side Sooo I took this out on the student nurses because i could and what I did wasn’t right but it was fun. Ohhh remember in middle school where I did this book report and the teacher (an old lady that was harmless and half blind ) told me a part of the book report was incorrect ...yesss made a dramatic issue out of it and even though I was right it didn’t matter because I got all moody and weird over it - bet I scared her.
Even today the bloodwork is fine but this lady came by my job looking for this one building because she was from the one hospital that dumped me - I thought about really sending her on the senic route to the building just for my own entertainment ...that moody erge did come up and I thought no that would be mean and don’t take it out on her the fact that her hospital ..just the place where she worked sometimes isn’t perfect. Emapathy is good.
Mom is the one that makes your food. I want the person that makes my food to be happy.