I think that CAH people who experience infertility need to be validated in that. Too often the intense anger arising from this whole condition spills over when infertility tops it off.

They don’t need to be told that there are millions of other people in the world who are infertile or that their treatment regimen is off or that it is going to be better for the next generation of CAH people.

Because quite simply - a percentage of  (but by no means all) infertility in the world is caused by PID as a result of casual sexual encounters and attitudes...so it is in a sense - self inflicted. CAH infertility is NOT self inflicted.

The issue of good control vs poor CAH control and whether treatment is optimal is also a relative non-issue. Over the course of years of TTC one would expect that control should be good at some of those times if control is the only obstacle to conception in a CAH person! There are quite possibly other unexplored/unresearched factors involved in CAH infertility.

And the promise/smugness that fertility for the next generation of CAH will be better is not helpful either to people experiencing the pain NOW.

When CAH people continually fall into the 10% of ’unexplained infertility’ I think that says something. When other reasons are found such as endometriosis, fibroids, tubal blockages etc. then it is much more tangible and something can often be ’done’ about it.

The ’too hard’ basket of the 10% ’unexplained infertility’ is isolating and unbearably painful - please understand that.