you can’t even put your name  at all which doesn’t bother me at all. 

 I’ ve been to theraphy a couple different times within the last couple of years and each time was told to just be myself and to find others that have CAH....  the CAH community . Don’t get it why you would think I’m bitter becauseI’ve always brought up because of the knowledge gain in the 70’s and 80’s that things are better and I believe that. "Medicine isn’t always right but it is forever changing" I think that is very wise  Other people can come and vent but find that I cant which is interesting. I seldom vent and If I do is taken as bitter when it’s actually coping.  Where would you like me to go to get and give support for CAH? Where did you think I’m bitter? I’ve written that I love my Endo but other people write (parents) their frustration about the kids endo any nobody call s them bitter.  Surgery? I’ve support and wished parents well and stated that some people need it know others later and some never will. I’ve also written that I thought five was a really good age for me to have it and yes the clitorectomy sucks but the vaginoplasty wasa really good hob even withthe vaginal stenosis in the last couple of years around 21 and 29. 

I ask where do you want me to go to get support and give support about CAH? What is your story about CAH?

I love to here everything and anything about CAH and of course things are better ...isn’t that awesome? and also people have days about the condition where they want to have fun, are just being silly, feel scared, are bored, are really frightened about the condition,  are angry, are proud about the condition - my CAH has been holding its own with my other medical conditions even last month when I was in the hospital with a virus that was really scary. If you think what I write is gibberish then that is fine or if you are tired then OK that’s fine thanks for the critic? of sombody coping with their condition.  I would love to read your story and thoughts about CAH. 

I like to put different names at times (trying out different nicknames)  and other people do this as well because maybe they are having fun with being creative or the other times want the post to be taken for what it is with out the name meaning just some soul with CAH. If I see an  Anon post?I don’t writethe person name because I respect that for some reason they don’t want to use it with that post but me??? and this has happened a couple of times Aimeee we know it’s you.   I’ve been writing on and off for the past six years and i once put in these different names that all had something in common and I thought that was really creative myself and another time I put in the name that is a nicjname of the state where I was born- I thought that was cute ....me bad.